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geraldineF
#21 Posted : Sunday, February 05, 2012 12:41:36 AM Quote
Rank: Member

Groups: Registered

Joined: 2/1/2012
Posts: 20
jenni_b wrote:
Hey Geraldine its so good that you've joined
I'm jenni
36yrs old now
Married with 3 children and severe ra

Trying to hang on in there on cyclophosphamide
But struggling to get through it in all honesty

I have a lot of support at home
Direct payments have helped a lot

Reading your post sounds like you need a drug review

Have you got access to a rheumatology nurse? Also you might find the spoon theory handy
It's on www.butyoudontlooksick.com




Hello jenni

Thanks for the welcome,

sorry to hear u have RA , how long have u had it ? i also have osteoarthritis in bottom of my back and gout in the 4 years i have had the RA have not been pain free , so good wen we have support at home , wen u say direct payment wat do u mean ? .

i have a rheumatology nurse dont get to see her very often tho but she is on the verge of changin my medication , she is goin to try me on humira with methotrexate , i am bit worried bout goin on the humira have heard so many bad things bout it but since been on here have heard good bout it .

i have never heard bout spoon theory dont know wat it is but just goin to look into it , thank you so much for your advice look forward to hearin from u again .

take care,

geraldineF xx
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geraldineF
#22 Posted : Sunday, February 05, 2012 3:01:50 PM Quote
Rank: Member

Groups: Registered

Joined: 2/1/2012
Posts: 20
jenni_b wrote:
Hey Geraldine its so good that you've joined
I'm jenni
36yrs old now
Married with 3 children and severe ra

Trying to hang on in there on cyclophosphamide
But struggling to get through it in all honesty

I have a lot of support at home
Direct payments have helped a lot

Reading your post sounds like you need a drug review

Have you got access to a rheumatology nurse? Also you might find the spoon theory handy
It's on www.butyoudontlooksick.com




Hi jenni,

So sorry u have RA , I also have osteoarthritis in the bottom of my back and gout in my feet , In the 4 years i have had RA i have never been pain free , How long have u had RA ? Wat are direct payments ? .

I have a rheumatology nurse she is on the verge of changing my medication , She is goin to try me on humira and methotrexate i was bit worried bout takin the humira heard so many bad things bout it but must say since bein a member on here dont feel so worried bout it .

Have just looked spoon theory up thats such a good way to make people understand RA ,

Thanks for a warm welcome from u in the forum look forward to hearin from u again .

Take care,

geraldineF xx
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geraldineF
#23 Posted : Monday, February 06, 2012 10:58:23 AM Quote
Rank: Member

Groups: Registered

Joined: 2/1/2012
Posts: 20
jenni_b wrote:
Hey Geraldine its so good that you've joined
I'm jenni
36yrs old now
Married with 3 children and severe ra

Trying to hang on in there on cyclophosphamide
But struggling to get through it in all honesty

I have a lot of support at home
Direct payments have helped a lot

Reading your post sounds like you need a drug review

Have you got access to a rheumatology nurse? Also you might find the spoon theory handy
It's on www.butyoudontlooksick.com



Hi jenni,

sorry i messaged u back twice my pc was playin up and wasnt sure if first message went through to u .

take care

geraldineF xx
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